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Rose
Hi to everyone on the list. My name is Rose...I was diagnosed with ibc
in April of 1992, and have been NED (no evidence of disease)
since the end of my treatments. I
met some (possibly many!) of you when I more actively participated in
the list.
I heard from Lee Smith, one terrific lady, who said it might be
good to hear from a happy survivor at this time. I think the main thing
to remember is that you *can* make it. Okay, you won't be in the
proverbial 'one piece', but you can make it out the other end of this
tunnel.
With the new information on the genetic variable for ibc, it
might not be too long before a cure is a real possibility; a cure
without having to go through the horrendous treatment process that is
open to us now. So, hang in there!
I had a very standard (for 1992) series of treatments, followed by five
years of tamoxifen. On my own hook, I took antioxidant vitamins and
germanium. The germanium I thought might help because it increases the
oxygenation of blood....more chance of getting the good guys to the site
of the main cancer battle.
Also took CoEnzyme Q10 and (okay, this is
weird...*smile*) a couple aspirin a day. Passing this along just because it
might help someone. It certainly is not medical advice!! Oh...and a
juice machine! It won't hurt to drink all the homemade juices you can
handle.
In other news: if you don't feel like eating good stuff, have a cupcake!
Or whatever else you want! Sometimes, you just need to pound in a few
calories, and your body knows just what it wants.
Trying to think of any other happy-type things that helped me.
Visualization (I pictured my hero, Bugs Bunny, riding in and skewering
the cancer cells, laughing that manic laugh of his), and picking one
song to sing at the top of your lungs every day.
My personal choice was
James Brown's version of 'I Feel Good', which also cheers up anyone who
sees the bald lady singing.
I can't tell you to be happy or be brave. Just hang onto the
possibility. And if you are just about out of possibilities right
now...may you have happy memories to snuggle up with.
Party on, Dudettes!!!
Love to you all,
Rose
* * * * * * * * * * * * * * *
February 12, 2005 Update
Regarding my 1992 survivor story: just wanted to add that I am still just
fine.. - no recurrence.
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